Florida Support Groups and Charities


EDS Florida is a group for Florida residents who have or believe they may have EDS as well as medical providers, family, and friends of EDSers. This group is for education, information, and awareness about Ehlers-danlos Syndrome and co-existing disorders such as Mast Cell Activation and Dysautonomia (POTS). Together we can bring awareness to the public and to the medical community one person at a time. Please join us if you live in Florida at: Ehlers-Danlos Syndrome Florida.

Northern Florida

The Northern Florida EDS support group is growing. Our goal is to offer support and share resources to those in the North Florida region. We meet occasionally and hope to have presentations on numerous topics in the near future. Join our Facebook page or email Lisa at auerl@bellsouth.net for additional information.

If you have and EDS support group or charity you to add to this list, please complete the Support Group Listing Request form.