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WEST OLIVE, Mich. (WOOD) — A single West Michigan family has lost five people to the same disorder.
It’s called Ehlers-Danlos Syndrome, and the Yasick family knows the damage it can do.
“How about we start with Uncle Steve?” Clara Klap says to her younger brother, Stevie Yasick, as they place flowers at the graves of their family.
“I remember that he would try and play baseball with me, and he would try to make sure that I was never bored and he would always play with me,” Stevie said, speaking of his father.
Stevie was diagnosed with the vascular form of Ehlers-Danlos Syndrome at age five.
“My mom told me that it just makes you weaker than you normally would be,” Stevie said.
“It’s one thing to have an adult. It’s a whole different story when you’re five,” said Clara Klap.
Ehlers-Danlos Syndrome is a rare genetic disorder that eats away at the collagen in your body, destroying arteries and organs.
Categorized in: Ehlers-Danlos in the News