Patient Expert Panel
Would you like to become a Patient Expert? Becoming a patient expert means representing the full spectrum of the patients affected by The Ehlers-Danlos syndromes and hypermobility spectrum disorders. Training will be given and you will be expected to take part in meetings, conference calls and publications where appropriate. The patient expert panel is made up of the patient representatives that sit on the EDS International Consortium, there is one expert per group or committee and we are currently recruiting for a number of our groups.