International Consortium Working Groups


The working groups were formed to investigate the co-morbid diagnoses and symptoms associated with the Ehlers-Danlos syndromes, principally with the hypermobility type. The groups have been tasked to identify the links between these co-morbidities and the Ehlers-Danlos syndromes and hypermobility spectrum disorders, to identify research pathways, and to provide guidance for the best clinical strategies to care for people with each of the co-morbidities.


Allergy, Immunology & Mast Cell Working Group


Autonomic Dysfunction, Dysautonomia & Fatigue Working Group

Peter Rowe, MD
Autonomic (USA)
Inge De Wandele, PT, MT, PhD
Physiotherapy (Belgium)

Beighton Criteria Working Group

Birgit Juul-Kristensen
Physiotherapy (Denmark)
Raoul Engelbert
Physiotherapy (The Netherlands)

Fatigue Working Group

Inge De Wandele, PT, MT, PhD
Physiotherapy (Belgium)

Gastroenterology, Urology & Gynecology Working Group

Qasim Aziz, MBBS, FRCP, PhD (Chair)
Gastroenterology (UK)
Gisela Chelimsky, MD
Gastroenterology (USA)
Heidi Collins, MD
Physical Medicine and Rehab (USA)
Angela Hunter
Patient Expert - UK

Hypermobility Spectrum Disorders Group

Brad Tinkle, MD, PhD (Chair)
Hypermobility Committee Chair
Geneticist (USA)
Britta Bergland
Geneticist (USA)
Marco Castori, MD, PhD
Geneticist (Italy)
Helen Cohen, MB, BCh, MRCP, PhD
Rheumatologist (UK)
Howard Levy, MD, PhD
Geneticist (USA)
Hanna Kaz Kaz, BA, MSc, MB
Rheumatologist (UK)

Neurology Working Group

Petra Klinge, MD
Spinal Neurosurgeon (USA)
Miles B. Koby, MD
Radiologist (USA)
Donlin M. Long, MD, PhD
Neurosurgeon (USA)
Sunil J. Patel, MD
Neurosurgeon (USA)
Eric L. Singman, MD, PhD
Neuro-ophthalmologist (USA)
Nicol Voermans, MD, PhD
Neurologist (The Netherlands)
Candice Ireton, MD
Patient Expert (USA)

Orthopaedics Working Group

William B. Ericson, Jr., MD, FACS, FAAOS
Orthopaedic Hand Surgeon (USA)
Cathy Raggio
Orthopaedics (USA)
Roger Wolman, MD, FRCP, FFSEM
Rheumatologist (UK)

Pain Management

Claude Hamonet, MD, PhD
Rehab (France)
Brad Tinkle, MD, PhD (Chair)
Hypermobility Committee Chair
Geneticist (USA)
Charissa Frank
Patient Expert (Belgium)

Psychiatric and Psychological Aspects Working Group


Physiotherapy Working Group

Inge De Wandele, PT, MT, PhD
Physiotherapy (Belgium)
Raoul Engelbert
Physiotherapy (The Netherlands)
Birgit Juul-Kristensen
Physiotherapy (Denmark)
Verity Pacey, PhD
Physiotherapy (Australia)
Stephanie Sabo
Physiotherapy (USA)
Nicoleta Woinarosky
Health Resources Consultant (Canada)
Sandy Smeenk
Patient Expert (Canada)