International Consortium Committees


The steering committee oversees and coordinates the efforts of the International Consortium. The type-specific committees focus on the unique challenges of each type that make up the Ehlers-Danlos syndromes. 


Steering Committee

Lara Bloom
Executive Director, International
The Ehlers-Danlos Society
Peter Byers, MD
Vascular Committee Chair
Geneticist (USA)
Clair Francomano, MD, PhD
Classical Committee Chair
Geneticist (USA)
Fransiska Malfait, MD, PhD
Rarer Types Committee Chair
Geneticist/Rheumatologist (Belgium)
Brad Tinkle, MD, PhD
Hypermobility Committee Chair
Geneticist (USA)

Classical Committee

Clair Francomano, MD, PhD
Classical Committee Chair
Geneticist (USA)
Nigel Burrows, MD, FRCP
Dermatologist (UK)
Marina Colombi, PhD
Geneticist (Italy)
Mark Lavallee, MD, CSCS, FACSM
Sports Medicine (USA)
Fransiska Malfait, MD, PhD
Geneticist/Rheumatologist (Belgium)
Christina Schwarting
Patient Expert (Germany)
Deutsche Ehlers-Danlos Initiative

Hypermobility Committee

Brad Tinkle, MD, PhD (Chair)
Hypermobility Committee Chair
Geneticist (USA)
Britta Bergland
Geneticist (USA)
Marco Castori, MD, PhD
Geneticist (Italy)
Helen Cohen, MB, BCh, MRCP, PhD
Rheumatologist (UK)
Hanna Kaz Kaz, BA, MSc, MB
Rheumatologist (UK)
Howard Levy, MD, PhD
Geneticist (USA)

Vascular Committee

Peter Byers, MD (Chair)
Geneticist (USA)
Julie De Backer, MD, PhD
Cardiogeneticist (Belgium)
James Black, III, MD, FACS
Endovascular Surgery (USA)
Michael Frank, MD
Cardiologist (France)
Xavier Jeunemaitre, MD, PhD
Cardiologist (France)
Dr. Diana Johnson
Geneticist (UK)
Dr. Leema Robert
Geneticist (UK)
Lynn Sanders
Patient Expert (USA)

Rarer Types Committee

Fransiska Malfait, MD, PhD
Geneticist/Rheumatologist (Belgium)
Sylvie Fournel-Gigleux, PhD
Geneticist (France)
Caroline Van Mourik
Patient Expert (Ehlers-Danlos syndrom Rlksforbund Sverige)
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