Charissa Frank is the president of the Flemish Patient Organization of Hereditary Collagen Disorders in Belgium, not only representing Ehlers-Danlos syndrome, but other disorders such as Marfan and Loeys-Dietz as well. Charissa suffers from EDS.
Charissa is a multi-national citizen and is well-travelled. Born in Germany, she was originally of Dutch nationality. After moving to the United States at age twelve, she enjoyed her teenage and young adult years in New Jersey where she went to school. Finally, Charissa ended up in Belgium, where she met her second husband and eventually settled down with her family.
After a successful international business career, she now focusses her attention on managing and leading the patient organization because there’s still a long way to go for patient rights, in particular for rare diseases, in Belgium.