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The girl who cried Zebra

It’s a beautiful sunny day in August. A young woman named Jennifer and her mum go to the beach to soak up the rays. On her way into the water, Jennifer’s right wrist starts to hurt, and then her left wrist does the same. The pain is excruciating. She doesn’t know it, but they have […]
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Laura Parsons who has a rare condition praises NHS staff in Worcester

A YOUNG woman with a rare condition has praised Worcester’s kind and hard-working nurses and doctors for the excellent care she has received despite the pressure the NHS is under. Laura Parsons has a rare complex condition called Ehlers Danlos Syndrome which can mean her joints dislocate easily, causing excruciating pain. Her fingers can dislocate […]
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Why I love knowing I have high-functioning autism

… Sometimes I would meet someone with autism – usually a young boy – and feel a sense of recognition, but I would swiftly brush the thought away. How could I have issues with communication when words are my trade? It was a bout of ill health, in 2012 that ultimately led to my diagnosis. […]
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NY Daily News Writer Voices Concerns About Ehlers-Danlos Portrayal on Grey’s Anatomy

New York Daily News journalist, Ariel Scotti expresses concerns about oversimplification of Ehlers-Danlos syndrome on October episode of Grey’s Anatomy It’s a medical drama that cuts really close to home. The doctors of “Grey’s Anatomy” have come close to curing diabetes and Alzheimer’s. They’ve brought a drowned Meredith (Ellen Pompeo) back to life, survived a […]
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Meet Harlow – The Service Dog & Social Media Superstar

The amazing and adorable service dog in training Harlow and her owner Jaquie join The Doctors. The 16-month old golden retriever is in the process of becoming a service animal for Jaquie, who suffers from eight chronic illnesses, including postural orthostatic tachycardia syndrome (POTS), Ehlers-Danlos syndrome (EDS), narcolepsy and epilepsy. In addition to helping her […]
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Ehlers-Danlos Syndrome: More Than Just Stretchy Skin and Bendy Joints

When other kids tripped, they got back up. When Lara Bloom tripped, she got sent to the hospital. When other kids opened a jar of mayonnaise, they spread the contents on their sandwiches. When Bloom opened a jar of mayonnaise, she fractured her wrist. When other kids asked why she was always on crutches, Bloom […]
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Award for teen who turned his life around

THE family of a “wonderfully strong and caring” woman suffering several critical illnesses has set up a GoFundMe page to try and raise £55,000 for life-saving treatment in Spain. Alison Turner, or Ali as she is affectionately known, has been plagued by illness from a young age, with gastrointestinal issues along with many joint dislocations. […]
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