What’s wrong with my daughter? A mom describes the misery of an elusive diagnosis

Published in Daily News, 4/6/2016

My favorite photo of me with my two children hangs in my kitchen. The photo, taken by my husband, Register photographer Mark Rightmire, is from our trip to Britain.

Spring daffodils are dancing around us. My daughter, Sarah, who turned 13 on our trip, looks healthy, happy and athletic.

Everyone reacts to the photo when they enter my kitchen. I always respond, “It was before Sarah got sick.”

In truth, we now know, she was sick even then.

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