Washington, DC Support Groups and Charities

EDS Metro DC Support Group

EDS Metro DC is a support group for people with EDS in Northern Virginia, Suburban Maryland, and Washington, DC as well as family, friends, and caregivers.  Our goal is to encourage growth, sharing and support among members, learn more about EDS and related conditions from each other and medical professionals, and help others better understand EDS and our lives as “Zebras.”

Our website provides information on our quarterly meetings, local medical practitioners, and useful links, including to our EDS Metro DC meet-up group and https://www.facebook.com/metro.dc.eds/.

Our quarterly meetings feature guest speakers and time for a general discussion.  They rotate between Washington, DC and Northern Virginia and are held at metro-accessible locations.  Between meetings, we stay connected and engaged through our email list, Facebook, and social gatherings.  To join our email list, please contact us at eds@eds-dc.org.”

For more info see www.eds-dc.org.




If you have and EDS support group or charity you to add to this list, please e-mail info@ehlers-danlos.com.