Virginia Support Groups and Charities

Tri-State EDS Support Group (MD, WV, VA)

Tri-State EDS Support Group (MD, WV, VA) We will meet on the third Thursday of each month from 6-8pm on the campus of WV University Healthcare at the Dorothy McCormack Center Conference room off of exit I-81/exit 14 in Martinsburg, WV (conveniently located between Hagerstown, MD and Winchester, VA). Please find us on Facebook at If you have any questions or concerns you can reach our local leader, Ashton Nesmith-Kochera via e-mail at

We would love to have you join us if you are located Frederick/Hagerstown, MD/ Eastern Panhandle, WV / Winchester, VA areas!

Hampton Roads

The EDS Hampton Roads Support Group is being established to provide information specific for our area. We are still a very small group so please join us and help us grow. You will find a list of recommended doctors for this area in the File section of the Facebook page. You can also contact us directly at


RVA EDS provides support more specific to the Richmond area, but welcomes & has members from many surrounding areas as well. RVA EDS meets in person quarterly (currently Jan/Apr/Jul/Oct) & socially in between. They also have an active Facebook group ( where you will find, in addition to conversation & support, a “Providers We Like” list. You can also find RVA EDS online at or email them directly at

South-Central Virginia

Virginia EDS/Chiari/Syringo/TC/IIH/POTS Support Group. We are a VA face to face monthly meet and greet, as well as on-line support and resource group. We are growing and now have six locations as opportunity to meet up with and form friendships during difficult times that tend to isolate us. The goal is to never be alone, to have friendships that develop as life long family. When that occurs that is a successful goal of the group, that has been met. In addition the education and awareness of our illness’s is imperative and is available in our files and members life experiences. We offer physician lists and medical professionals that assist us in forming our individual medical team. The on-line Support is strong, and far reaching.

This is a support group for you, and is “your” support group.

The six locations for meet and greets:

  • Fredericksburg
  • West End Richmond
  • Chester/Hopewell
  • Chesapeake
  • Roanoke
  • Lexington coming in 2016

You can reach us on Facebook as we are a closed group, with responses to requests daily: Screening Is performed, for safety of group. Also reach us by email at

If you have and EDS support group or charity you to add to this list, please e-mail