Ohio Support Groups and Charities


The Cleveland “EDS Support & Friendship Group” has regular monthly meetings, communications, and social activities on the East and West sides. Our Goals are: INFORMATION, SUPPORT, & AWARENESS. Please join us!

See meeting details on our website and use the “contact us” button to email our group leader. Find us on Facebook under the name: Cleveland, Ohio EDS Support Group.


The Dayton Support Group meets at the Neuro Rehab and Balance Center at Southview Hospital. To learn more about the group, contact Andrea Julian at andreadjulian@gmail.com. You can also find them on Facebook under the name of Dayton Zebras.


Our group is made up of people who are affected by Chronic Pain conditions, including Ehlers-Danlos Syndrome, Fibromyalgia, or any Chronic Pain Condition. We welcome those who have EDS, those who have loved ones with EDS, and those still seeking an EDS diagnosis. We meet regularly and have an active Facebook Page to support each other and share information and experiences between meetings. Meeting dates are sent out to all who request to be added to our e-mail distribution list and are posted on our Facebook Page. Anyone interested in joining our group, Serenity Chronic Pain, is welcome to e-mail BPiehl@aol.com and/or request to join our Facebook Page.

If you have and EDS support group or charity you to add to this list, please e-mail info@ehlers-danlos.com.