Minnesota Support Groups and Charities

We are an EDS support group based in Minnesota. We are happy to accept people both with formal diagnosis or suspected Ehlers-Danlos Syndrome. Caregivers are welcome as well. Other connective tissue disorders are welcomed. If you live in any of the states surrounding Minnesota and can not find a support group listed you are welcome to join ours. It’s the best way to stay connected with fellow Minnesotans with EDS. We host monthly informal meetings.

All meetings are listed as an event on our Facebook page.

After applying to our Minnesota Facebook support group you will receive a message from an admin confirming your request to join the group. Make sure to check your “other” folder in your Facebook messages. You will be asked basic information, as we want to keep our group a safe space. This is a private group, meaning only members can see posts and you must be approved to join the group.

If you have and EDS support group or charity you to add to this list, please e-mail info@ehlers-danlos.com.