EDS New England/Massachusetts Support Group meets quarterly (every three months) on Sundays for a minimum of three hours at Children’s Hospital Boston-Waltham, 9 Hope Avenue, Waltham, Massachusetts, in the Deveber Conference Room. Parking is free.
Our group is comprised of individuals and families with young children, teens, young adults and parents who are affected by Ehlers-Danlos or a related connective tissue disorder (either personally or as a parent of an affected child). We are committed to supporting one another in every facet of our work, whether it be through our quarterly support meetings/presentations, interim awareness meetings/sessions, ongoing awareness initiatives such as our “EDS Physician Awareness Committee”, or through a variety of online communications, over the phone discussions or simply by texting one another. Feel free to contact Jon Rodis at email@example.com for more information on the group or if you would like to join.
If you have and EDS support group or charity you to add to this list, please e-mail firstname.lastname@example.org.