Illinois Support Groups and Charities

Champaign Urbana Ehlers Danlos Support Group

Mettings: First Saturday of the month from 1pm-3pm at:

The Forum at Carle Hospital (Main Campus of Carle Hospital)
611 West Park Street
Urbana, Illinois

Contact: Deborah Royce,

Visit the Champaign-Urbana EDS Support Facebook group

Park in the Carle Garage opposite the Main Lobby doors. The Forum is slightly North, a short distance from the exit when you walk from the parking garage. There will be a greeter at the front door of The Forum as well as signs to direct you to the room where we will be meeting.


The Chicago EDS Support group is a herd of zebras ranging from young to the young at heart.  We generally meet the first Saturday of each month from 11 am to 1 pm in Chicago.  Past meeting topics include invited guest speakers, programming sessions, and group discussions about living and being diagnosed with EDS.  The group and meetings are open to EDS’ers, our allies, and those who are just beginning the diagnosis process.  To contact the Chicago EDS leadership committee, or for information on our monthly event topic/location, please reach us through our Facebook or MeetUp page.

If you have and EDS support group or charity you to add to this list, please e-mail