We meet quarterly for our formal support group meetings and have monthly events in between including social, fundraising and special guest speakers. We invite those affected by all types of EDS and/or Joint Hypermobility Syndrome, and other connective tissue disorders, including their families and friends. Our purpose is to connect and support each other as well as bring awareness and education into our community and to the medical field. If you would like more information please contact Justin or Nancy at firstname.lastname@example.org. We will get back to you as soon as possible, but it could take up to 24-48 hours.
If you have and EDS support group or charity you to add to this list, please e-mail email@example.com.