A national non profit organization that dates back to 2009 grown through our online private support group to approx 500 members. They received their non profit status in 2013. They advocate with legislators, researchers and medical professionals while also supporting adults and families through a very active online group. In addition, they hold peer to peer support groups and socials across the provinces.
Canadian Ehlers-Danlos Foundation
The ILC Foundation
ILC: Improving the Lives of Children and families living with chronic pain
This group meets in Mississauga and surrounding areas. Anyone who has chronic pain is welcome. Visit our Facebook page.
If you have and EDS support group or charity you to add to this list, please e-mail firstname.lastname@example.org.