Sandy Smeenk

Sandy Smeenk

Patient Expert (Canada)

Sandy Smeenk is the co-Founder and Executive Director of the ILC Charitable Foundation (Improving the Lives of Children and Families with chronic pain).  Sandy has led substantive initiatives for chronic pain awareness and education and most notably for Ehlers-Danlos syndrome (EDS) through the development of an annual Canadian Medical Education (CME) accredited conference attended by multidisciplinary specialists with the goal to bridge gaps in evidence based guidelines for the diagnosis and treatment of a board group of chronic pain diseases, using EDS as a model of optimal care. Sandy is also part of a national leadership team for the development of a pan-Canadian pain campaign and strategy.