PATIENT’S VOICES WANTED: European Patient Advocacy Group, EURODIS, Launches Rare Disease Survey


EURORDIS, a European non-profit and non-governmental patient-driven alliance of patient organizations, has launched a survey about the impact of rare disease on daily life. Specifically, the survey looks at the social care and coordination of care needs of people living with a rare disease and their families.

More information and the survey can be found here

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