Living With a Rare Disease

Published in Huffpost Lifestyle, 3/1/2016


I have had health issues my whole life, although mild, we can now look back and see the ‘signs’ that I wasn’t the typical child. I had joint pain as a child and presumed these were the ‘growing pains’ all my school mates were feeling. I was always very flexible and suffered lots of dislocations. I got tired quickly and had issues with my gut, being hospitalised numerous times for chronic constipation. Despite this I was an active child and spent most my time outdoors.

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