Laura Sylvester is the Education Advisor of The Ehlers-Danlos Society and is responsible to help raise awareness, knowledge and affect the education of EDS internationally by attending and presenting at conferences and educational institutions worldwide. Her role focuses on actively advocating, researching, working in collaboration and spreading the education of EDS to the general public, governmental health departments, medical professionals and medical schools and curricula.
In 2016 and prior to her involvement with The Ehlers-Danlos Society, Laura was the first EDS patient from the UK to undergo all four lifesaving neurosurgeries and pioneering brain surgeries in the USA to recover from being wheelchair bound and undergoing intense physio and vision therapy sessions re-learning how to read, write and walk again. To date she has successfully fundraised over £200,000 for her medical ongoing treatment and care costs. After her diagnosis of Ehlers-Danlos Syndrome with many co-morbidities in 2014 and recovery from multiple neurosurgeries, Laura has dedicated herself to be a ‘voice’ for the EDS community by being in the forefront of patient advocacy actively pursuing improvement of health care and governmental policy for EDS patients in the UK and internationally. In November 2016 she was honored as the Patient Guest Speaker at the annual “Chiari & Syringomyelia Foundation Gala Dinner” in Washington D.C. (https://vimeo.com/197248882)