Internet diagnoses dancer with incurable condition after doctors left mystified

Published in Independent, 5/13/2016


A young woman has thanked social media users for helping her hunt down a correct diagnosis for an incurable genetic condition that had left doctors mystified.

Cheyenne Adele Rose told the image-sharing website Imgur of the numerous injuries, broken limbs and constant pain which threatened to end her career as a dancer.

She said she was “terrified” she would no longer be able to dance and that “countless neurologists, neurosurgeons and spinal specialists” could not tell her what was wrong.

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