Former Hanover teacher and student race towards recovery

MECHANICSVILLE, Va. (WRIC) — With every step, Catherine Smith and Heather James are taking a leap for their body, mind and spirit. “She’s just been a great support for me,” James says about Smith. In 2013, James was a senior at Hanover High School who was fighting for her life. She was born with Cystic […] View page

Aer Lingus pilot forced to retire due to rare EDS illness

Aer Lingus pilot forced to retire due to rare EDS illness A FORMER Aer Lingus pilot forced to retire due to a rare illness has said he hopes to see “greater knowledge and understanding amongst doctors” of the condition. Richard Black (38), who is originally from Bangor, was forced to retire after a 16-year career […] View page

To My Partner Who Has Watched My Health Decline

We were only 13 and 14 when we got together. It was a bit of a whirlwind, if you want to call it that — we went from barely knowing each other to being in a relationship. Yet, we’re still here, nearly eight years later, and I’m nearly 21 and you’ve already turned 22. You […] View page

DL families help kids battle a disorder not seen from the outside

“You can’t be tired! You’re a kid!” That’s what Connie Prellwitz, the mother of 7-year-old Emily Prellwitz, thought when Emily would get tired out unusually quickly during activity. Then she found out why when Emily was diagnosed with Ehlers-Danlos Syndrome just a few short months ago. Recommended for you Gov. Mark Dayton told reporters Monday […] View page

Perfect pooches get ready for this year’s Scruffs at Cotswold Wildlife Park

DOGS with the waggiest tails and the prettiest eyes will today be crowned champion pooches. But the silent star of Cotswold Wildlife Park’s annual Scruffs competition will be Iggy, the assistance dog of one of the judges for 2016. Scruffs judge Karen Williams suffers a rare condition, Ehlers Danlos syndrome, which means she cannot regulate […] View page

I’d rather NOT be here today

(Ehlers-Danlos Syndrome) Dear Dr’s, Physio’s, OT’s and GP’s, Look and learn and understand please. Don’t judge me or turn your face away I don’t wish to be a patient in the N.H.S today. I’d rather be out, Fulfilling my life. Than sitting in waiting rooms, Just ‘cause of the roll of a dice. Which has […] View page

Ehlers-Danlos Syndrome, rare disorder, afflicts Kari Bourque

LITTLE CURRENT—The pain of losing her twin sister is never far from the surface, but Kari Bourque takes some solace in knowing that the rare disease that took her sister’s life at age 22, and only days after giving birth to her son, is not bringing pain and suffering to her now. In January 2010, […] View page

10 People Discuss Life With Disability and Illness

“I have a connective tissue disorder called Ehlers-Danlos syndrome, which results in hypermobile joints and a number of other health conditions and concerns affecting my digestive, respiratory, skeletal, circulatory, immune, and other bodily systems. “EDS was first described by Hippocrates. It’s not a new disease; it just needs research. There is a lot of ignorance […] View page